For some reason I always imagined there would be a Phase 3 of Travel Abrodge. Phase 1 was the RTW trip, Phase 2 was my Central America time, and Phase 3 was nothing more than an inkling that I would have one more thing to do before going back to stability. It usually took the form of Europe in my daydreams, sometimes a road trip, or the rare Antarctica idea. I never could have predicted what Phase 3 would actually be.
I came back to the United States because I had a bump in my side that was growing rapidly. Tristen the Tumor, as I called him. My male counterpart trying to break free out of my rib – a reverse Adam and Eve scenario. If Eve caused Adam this much pain, I feel for him.
I’ve had pain in my side for almost 10 years already. Back when it first showed up I was told it was an inflamed rib – costochondritis – and there was nothing I could do but ice it and take Advil when it acted up. Then on a random day in February 2016, a small bump appeared at the very spot that had been a constant literal pain in my side. That small bump was the size of a golf ball by May. Three different doctors in Guatemala told me three different things so I decided it was time to go home and get some answers.
Two doctors, one ultrasound, four jabs to get a biopsy sample, and three labs to analyze it finally gave me an answer. Tristen is a synovial sarcoma.
Synovial sarcoma is a rare malignant tumor. The chances of getting a sarcoma are small to begin with, but a synovial sarcoma is somewhere around 3 in a million. Don’t I feel special? It has been growing in a muscle in my side for 10 years, and just in the past 6 months it outgrew its home and declared its presence to the world.
Cancer is a scary word. It’s a term that is largely perceived as a dangerous, incurable disease. What it really is is an all-encompassing word that covers a vast range of illnesses. Yes I have cancer, if you want to put it that way, but it’s a very specific kind. As the most recent round of tests showed – a CT scan and an MRI followed my diagnosis, I’m getting really used to hospital visits – my cancer is localized in the sarcoma. This is the best news I have received since I started this process. This means that the surgery to remove Tristen is most likely curative. Yes there is a small chance I would need radiation/chemo to make sure it is gone for good, but the doctors are stressing that ‘small’ word. In all likelihood, when the surgery removes Tristen, the cancer should go with him.
I have surgery on Monday. 8 weeks after my first doctor’s visit but only 3 days after being told the surgery should fix the problem. It’s both a long time coming and so suddenly here I can’t wrap my mind around it yet. Maybe that’s better, less time to really think about being put under general anesthesia and having a near-tennis-ball-sized tumor cut out of me, along with part of the muscle it has lodged itself in and the skin on top of it, to be replaced by a piece of mesh that will hold the remaining parts of muscle together. Before I know it I’ll be on pain meds to help combat a whole new kind of pain – recovery. Then physical therapy. And hopefully the news that we got it all out. And then, the best part, no more pain in my side. I don’t even remember what that feels like after almost a decade of randomly feeling like I’m being stabbed in the rib. But I don’t want to get too far ahead of myself, first things first.
I have debated whether or not to post anything about this unforseen Phase 3, heretofore known as The Tristen Phase. It’s deeply personal and uses words that probably causes more alarm than I am actually feeling. I am surprisingly calm about all of this. I even managed to enjoy the MRI (FYI if you ever have to get an MRI practice meditation, it helped me stay calm and barely even notice the loud banging noise). So why am I posting this now? Two reasons.
One. It is the easiest forum I have to update everyone. I have been facing the best problem in the world: having too many people who care about me. I am truly lucky to have so many people want to know how I’m doing and wishing me well. But it honestly does get exhausting, getting reminders almost daily that something is wrong with me and having to constantly retell what is going on. This way I can write it here and everyone gets the update at once.
Two. This is part of my journey. It is not why I started this blog and it is not about travel, but it is about life. I made the decision to travel at a time when I didn’t have any medical hinderance, knowing that the future was unpredictable. The future did not let me down, I could not have predicted this. So if anyone is reading this not because you know me but because you happened upon my blog for the travel stories (and managed to read this far into this long-winded post), take this as a reminder to go now. You never know what will happen so make that dream your reality.
When I found out I had a sarcoma… Well first I cried a little, I mean come on it’s cancer it’s scary shit… But then I realized that it came at a time when I could handle it. If I had found this out when the pain started at 19 years old I would have freaked out. Who knows what would have happened with school, how that would have affected my career or ability to travel. Having it now at 29 (which, by the way, is the typical age these things show up) I have done everything I wanted to do in my 20’s and I am okay to stay here and deal with this. Of course it would be better to never have to deal with this, but apparently life was going too well for me and the universe decided I needed some balance.
So there it is. I don’t know how much I will write about what’s going on with Tristen and me. The idea is that I will use this as a forum to update everyone, so if you want to check in on me please look here first. I have surgery on Monday 8/15 and will be in the hospital for 2 nights. Recovery will be 4-6 weeks in Vermont. I can’t promise frequent or timely updates so please be patient.
And lastly, no, they won’t let me keep Tristen and put him in a bottle of mezcal. I know, I’m disappointed too.