The surgery went well. At least that’s what they told me. All I knew when I woke up was PAIN. SERIOUS PAIN.
People said I would wake up from the anesthesia (I had general, so I was totally out) and not even know that the surgery had begun. I wish this was the case. I knew very well that something had happened to me. I opened an eye so the nurse would know I was awake, it was my only hope of contacting her. I did not remember there was a call button on my bed. I didn’t even know anyone had told me that. My eye move worked though and when she came over I was able to get out one word: pain.
She wiped my tears and pumped me full of something, lots of numbers and letters I had no hope of understanding, and I felt like I was floating on a cloud being showered in tingly confetti as I drifted off to sleep.
After a couple of rounds of coming to and passing out again, a swap out of the epidural they had given me for a much higher dosage (pregnant women heed my word: the epidural is a wonderful invention, get it), and my first and hopefully last experience with voiding in a bedpan, I was able to finally leave the recovery area and move to my room. My parents saw me there, filled me in on some of what my doctor told them and life outside the OR, and I fell asleep in the middle of the women’s gymnastics beam event final.
The first night went surprisingly well. In between vital signs checks, IV bag swaps, and pee breaks, I slept steadily the whole night. For my 5 am bathroom break I even managed a little walk to the neighboring reception desk and back. In normal life this 20 yard shuffle would be an embarrassing attempt at movement, but 12 hours post-surgery it was an accomplishment. By the time my doctor came to see me, around 9 am or so, I was sitting up in bed watching TV, having already consumed a breakfast of scrambled eggs and toast.
Then she told me it went well. They were able to get all of Tristen out, cleanly. He was, however, larger than anticipated. Instead of sticking to his home in my outermost muscle, he set up shop in the neighboring #2 muscle as well, so they had to take some of that one out too. Good news was that he didn’t touch the #3 muscle or my rib at all. Bad news was I now have 2 pieces of mesh in me, one in each muscle, and a permanent convex side. What used to be a huge bump has now become a sinkhole.
Now we wait for pathology. They will measure the cell sizes of Tristen and the margins of the muscle/tissue extracted with him, and that will determine whether or not I go through radiation. I’ll know in 7-10 days.
After our chat I talked to Physical Therapy, who taught me how to properly get in and out of bed so I don’t use what’s left of my abdomen muscles, and the Pain guys, who decided we could turn off the epidural and see how I did just on Oxy. Apparently I did just fine, and by 5 pm I was discharged and on my way home.
This does not mean I’m all better by any means. I still have a drain hanging from my side leaking red fluid that has to be emptied and measured consistently. As soon as it’s less than 30 cc for 2 days straight I can remove it, but we’re still seeing 75 cc so it’ll be a few days. I still have to take Oxy and Tylenol or Ibuprofen every 4 hours, although I’ve gotten it down to 5 hour intervals and will continue to wean myself off of it. And I still have to make a concerted effort to breath deeply, take shuffle walks every few hours, and shower. But at least I can do this all from the comfort of my home.
My family has been amazing. From 3 am pill doses to tetris pillow configurations they are there for me above and beyond. My parents, my sister, and her husband have all made this so much easier to bear, a thank you can’t even begin to cover my gratitude. My friends, I’m sorry I haven’t been near my phone to thank you for your support too. From the beautiful flowers that made it to my room before I even did to the endless goodybag of candies and trashy magazines, you guys are seriously the best. And to everyone who reached out to me after my last post, I am amazed at the wonderful, kind-hearted people that I have met in my life and thank you all for your words. They meant so much to me.
I’ll continue to update as I find out more and as the healing process continues.